FOUNDATION FOR SARCOIDOSIS RESEARCH LAUNCHES CLINICAL TRIAL EQUITY INITIATIVE
CLINICAL TRIAL EQUITY INITIATIVE
CHICAGO, PRNewswire -- The Foundation for Sarcoidosis Research (FSR) is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign.
to recruiting patients for clinical trials and research.
create a survey to provide a platform for Black Americans to share their experiences and insights.
survey at www.stopsarcoidosis.org/ACTNow to help inform recommendations for improving care and increasing representation in clinical trials. The survey is available now through November 30, and will culminate in a Congressional Briefing in April of 2023, Sarcoidosis Awareness Month.
they are significantly underrepresented in clinical trials and research. According to the FDA, only 7% of clinical trial participants, globally, and 16% domestically, are Black, while White participants represent 76% and 78% respectively.
through awareness events, media, and an educational public service announcement video featuring celebrity spokesperson, Jeryl Prescott Gallien. The campaign was featured in media
outlets such as The Roland Martin Show, The Tavis Smiley Show, USA Today and Yahoo! News. Phase II, ACTe Now!, sponsored by Boehringer Ingelheim, Kinevant Sciences, Mallinckrodt Pharmaceuticals, and Chan Zuckerberg Initiative, is the next
step in addressing health disparities in the sarcoidosis community, including Black American men.
website to make sharing messaging easy. FSR is also calling all providers, researchers, and clinicians to commit to having discussions with your patients about clinical trials and research participation.
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